Saturday, June 1, 2013

Last Monday Night

Monday, 5/27/13 at 10:20 pm

Samuel had a good day at home. He was tired after the drive home and slept for a couple of hours. Then he wanted to sit outside on a porch for about an hour. He said the wind felt so good.  It's amazing what we take for granted until we've been through something like this.  He slept for a couple more hours this evening and then had two plates of food. He has been missing his Daddy's good cooking!   Naomi brought the babies and Rachel and Miriam Grace home this afternoon.  The other kids are still staying at the ranch house. I was a little surprised to see Gabriella's reaction.  She couldn't wait to see him, but when she did it really scared her and she wouldn't talk to him.  When he got up later and went outside, she seemed to adjust and they are back to being buddies again.  She is really too young to understand why he has so many tubes etc and it scares her.  I must say it is a lot to take in, but we will all have to adapt because this is how it will be for the next six months or so. When he is well enough to have more surgeries, he will start losing some of the drains.  I still have the same concerns that I've had at the hospital the last few days, but no one can really give me a good answer to what is going on.  All we can do is wait and see what happens. If anything goes wrong, we can always take him back to the hospital, but we are basically doing the same thing at home as we were there.....taking care of his needs and trying to patiently wait.   His body was such a mess of problems that sometimes the doctors don't even have the answers. I guess this is where we have to trust in the Lord and lean not on our own understanding.  He doesn't have a fever and he is better than he was yesterday and he is sooooooo happy to be home!  I'd say that's a day of progress. Praise God! 

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