Saturday, 5/25/13 at 11:45 am
Dr. Kozar came by to see Samuel. She's the best! We have been waiting all morning to get someone to help him into the spine brace. When Dr. Kozar saw that he was having to eat laying down, she got a little upset. Physical therapy told us that they wouldn't be by for three days because of the holiday. Dr. Kozar said that can't happen because he needs to be building strength each day. It has been kind of frustrating on the 6th floor because things just don't get taken care of like they did before. He has so many drains and they have to be emptied often to work properly. The good news is that Dr. Kozar said that she is going to push PT and try to get us home!!! She said she thinks he will do much better at home. That's the best news we've heard in a long time!!!! They are sending someone up here to start teaching me how to use the feeding tube and work all the equipment. Dr. Kozar said we are going to aim for Monday if PT can do their part. She is having an x-ray done of his tummy first because it looks really swollen and tight today. Please pray for a day of nothing but good news! I really think Samuel will do well at home.
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