Wednesday, May 7, 2014

Update on Samuel – Day 6

Today was definitely a day of progress here at the hospital.  We started off the day with all the doctors coming by.  Then the Physical Therapy and Occupational Therapy teams came by.  They worked with Samuel and we were able to get him into a sitting position without using his tummy muscles at all.  Then we got him onto his feet and we went for a short little walk down the hall and back.  Samuel is using a walker, but he did much better than I expected.   I am so proud of him.   His tummy also started to wake up and he got to eat some broth and jello for lunch and dinner.  He says it is difficult to eat because his abdomen feels so tight that there is not room for the food.   The doctors said it will take a lot of time for that to change and it has to heal before he can exercise enough to get things to stretch and expand.  

This afternoon the infectious disease doctors came by and explained what is going on with his bloodwork.  He has a bacteria that is somewhat similar to MRSA, but grows on all of our skin, so it is considered a contaminant.  The problem is that they think it has gotten into Samuel’s bloodstream.  They have him on the right antibiotics to try to take care of this kind of an infection.  He did not have a high fever all day today.  He gets easily exhausted and wants to sleep a lot.  Dr. Wright came by this evening and we talked for a long time.  He is going to help us find the right doctors closer to home to help us with the minor bumps along the road ahead of Samuel.  It makes me feel really good to know that we will have a doctor in Houston or closer that can help Samuel when things don’t really go as planned.  That doctor will also help with removing some of the tubes and drains he will have to go home with.   I feel so blessed to have found such an awesome group of doctors here. 

This evening, we had a little surprise.  Jill Kitzman, Kamala Kitzman’s sister came by to visit and brought her three children.  They brought me homemade chicken, potatoes and carrots for dinner.  I enjoyed the visit and it was nice to get to laugh a little bit.  

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