Samuel had a good day yesterday. He is really happy to be able to have clear liquids. They removed his nephrostomies yesterday. It is the first time he's been without those two tubes in a year! Yesterday, they removed four of the five tubes we were hoping for. Samuel looks like he feels so much better than he did just a few days ago. The TPN's seem to make a huge difference for him.
Yesterday we had a dear friend who we met here in Baltimore 16 years ago come and visit us. It was really good to get to visit with Paige. We had a good time catching up on what all has happened in the last sixteen years. It was a reminder to me of how God has worked in our lives over the years. I can't say it has been pain free, but I know He has a plan and a purpose in everything.
We are starting to work on a plan to leave the hospital and go home. My friend, Kim, is in DC and will be flying home on Tuesday morning. Her flight to west Texas has a layover in Houston. If everything goes as planned, the doctors are talking about releasing Samuel by Monday so that I will have help getting him home and maneuvering the airport. Getting in and out of the seats on the plane without using his tummy muscles will be a big challenge. Having Kim there would be very helpful. Samuel is making good progress, but he has a few more milestones to meet before they will release him from the hospital. He will have to return for another surgery, very minor compared to this 18 hour one, in about six weeks or so. Until then he will be treated by a doctor in Houston. It is really exciting to be reaching this point! I know he is a long way from being his old self again, but I feel like we are well on the road to complete healing. Praising the Lord for bringing Samuel this far!!!
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