Monday, May 12, 2014

Day 11 - Samuel Update

Sorry for not sending an update sooner. Kim and I went to dinner and I had decided to take a break from Facebook for the day.  I was really surprised and touched by Samuel's beautiful Mother's Day post.  He's an amazing kiddo and I am so thankful God made me his mom!  Samuel had a very good day yesterday (Sunday). He told Kim and I to go enjoy dinner while he watched Duck Dynasty!  They were able to take him off the oxygen yesterday afternoon. They tried stopping the NG tube to see is he could tolerate it, but he became nauseous within a few minutes. They said that the nausea is caused by the fact that his tummy still is not completely awake after the 18 hour surgery. It is hard to believe that it could take 11 days to wake up, but apparently that isn't unusual after such a long surgery.  For now he will need to keep the NG tube, which he says is so much better of an alternative to the vomiting. The incision and everything seems to be healing well and there isn't any visible damage caused by him being so sick for those two days.  They are not going to be able to remove the nephrostomy tubes because he has developed kidney stones now. They are trying to come up with a plan to take care of that problem. His kidney levels have been extremely elevated and they are trying to do whatever they can reverse any damage done. This came on very quickly, and the levels tripled three times the normal levels overnight.  They have been questioning whether or not a central line was the right decision for Samuel because of the risks and the type of infections he has. This morning they went ahead and put in a central line to his heart and they are starting him on TPN lipids today. He really needs the nutrition. Kim was pretty surprised by how much weight he has lost since surgery.  He looks very frail.  Right now, Samuel is having an ultrasound done so the doctors can decide how to proceed with treating the kidney problems. He has not had a fever since yesterday. He seems like he is back on the road to recovery and taking those baby steps towards complete healing.  He was able to shave yesterday, which really made him feel better too!  Jacob and Joshua would have been so envious of his full beard!   Samuel's pain seems manageable too and he is no longer on the narcotics or PCA pump.  His attitude is much better also and he seems to have the will to fight again. God is certainly answering many prayers. Saturday was the scariest time we've had in many months. It is hard to believe he is so much better today, which is a testimony of God answering the prayers of so many people praying for him.  

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