Back at Memorial Hermann! :(

Well....this has been a very frustrating experience. Samuel came to the hospital with pain in his lower abdomen yesterday afternoon.  He was also having problems with the JP drain not working quite right.  His situation is so complicated that the doctors don't really know what to do sometimes.  Dr. Kozar is out of town,  but we've been in contact.  At about 10:00 pm last the trauma team made the decision to remove the SP tube because it wasn't working right and it is the source of much of the pain. The plan was to remove the drain and send us home.   We were pretty happy, but it didn't go so well. They were not able to pull the tube out. They are concerned that it has either been entangled in scar tissue or possibly eroded into something else.  They admitted him to the hospital and we finally got a room around 2:00 am. The urology team came by this morning and tried again to remove the tube. It was extremely painful and I honestly cannot believe they proceeded to try to remove the tube...but they did!  It was impossible and now we are continuing to wait for the CT scan.   They put him back on morphine. It is helping some, but not elevating the pain.  I am thankful we are out of the Trauma ER because it is a very scary place to be at night.  There were two code blues while we were there and a lot of noise. Being in a room is so much better!  We have had very little contact with the urology team here and dealt mostly with the trauma team.   Today we got some pretty negative news about Samuel's upcoming surgical possibilities. I want so badly to take Samuel to Johns Hopkins to his original doctor.  I really value his opinion.  We have been in contact with him and he is so much more optimistic.  I wish we could get to a place where Samuel is doing well enough that he could go to Baltimore for a consult.  Tomorrow Dr. Kozar will be back. I like it when she is here because she is well respected and a great advocate for Samuel.  Please continue to pray for pain control, complete healing, rest and strength.