Wednesday Morning

We had quite a night. The IV antibiotics brought his fever down from 103 to 101 and they sent us home at midnight.  Basically the teams are not communicating. We got home around 2:00 am.  Dr. Kozar was asleep and didn't get my text until 5:00 am.   She had us come back to the hospital. The only way you can see a trauma doctor on a day that isn't clinics is to go through the emergency room.  They did all kinds of tests and we are awaiting for the results now.   Dr. Kozar is in the operating room with trauma cases and we haven't seen her yet. Samuel continues to have a fever of around 101.5.   There is a very strong smell coming from the open part of the wound and the JP drain.  It actually makes your eyes water and gives you a headache.  He didn't have that until yesterday so my guess is that he got some sort of infection that is not even associated with replacing the nephrostomy tubes in his kidneys.  During the night the left nephrostomy tube started working again, which is good news. We are exhausted. Everyone talks about us being so strong, but we aren't strong. We are in survival mode and have been for over two months now.  We know that we cannot keep going at this pace. It isn't just Samuel we are dealing with. We have so many other kid situations and we just feel worn out. Please continue to pray for Samuel and our entire family.   

PS - I have no phone service in the trauma ER.